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HemLEAD Newsletter: Hemophilia Advocates Convene for 7th Annual Leadership Summit

HemLEAD Newsletter: Hemophilia Advocates Convene for 7th Annual Leadership Summit

By: Frankly team

May 9th, 2019

Advocacy and Leadership

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HemLEAD Newsletter: Hemophilia Advocates Convene for 7th Annual Leadership Summit

Top hemophilia patient advocates from around the world gathered in Brussels, Belgium, on January 21 to identify and address the community’s unmet needs during the seventh annual Global Haemophilia Advocacy Leadership Summit.

This year’s event, hosted by the Hemophilia Advocacy Advisors Board (HAAB), a group of leading patient hemophilia advocates, and Bayer, convened more than 50 advocates from 25 countries. The two-day summit hosted internationally-renowned speakers, including Brian O’Rourke, President and Chief Executive Officer of the Canadian Agency for Drugs and Technology in Health, Cedric Hermans, head of the Division of Haematology at Saint-Luc University Hospital, and Diane Nugent, Chief of Hematology at the Children’s Hospital of Orange County.

Following the theme of “Challenging the Status Quo: Advocating for Treatment and Care,” the international delegates learned about varying innovations available in hemophilia care and how to advocate using traditional and non-traditional channels. Through a robust and enriching program that included presentations and hands-on workshops, attendees discussed pressing issues affecting the hemophilia community and developed skills and relationships to help achieve change in their own countries. At the summit’s poster session, organizations from countries including Argentina, Australia, Colombia, Japan and more, presented the novel scientific research related to this year’s theme.

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