This website is intended to provide information to an international audience outside the UK.
Stylish group of young men with hemophilia A

Hemophilia Topics

Hemophilia Topics

Filter by

High Anxiety: Leaving Home Can Be Exciting (And Scary)

By: Frankly Team

August 6th, 2018

Leaving Home

Admit it! You’re tired of the same old, same old, and you’ve been secretly counting down the days...

Read More >

Staying Healthy While Traveling

By: Frankly Team

August 6th, 2018

Traveling

You do a great job of managing your hemophilia at home, at school, and on the job ...

Read More >

Untold Stories – Documentaries about Lives with Hemophilia: A Story from the Creator

By: Amit Sain

July 23rd, 2018

Advocacy and Leadership

My name is Yogesh Sain. I am 26-year-old and living with severe hemophilia...

Read More >

A quick guide to studying abroad with hemophilia

By: Tim Reinelt

July 9th, 2018

Travel

The best decision I made for this year was the decision to do a semester...

Read More >

An Alumni remembers how SURO shaped him

By: Stefan Tasic

June 18th, 2018

Leadership

What do I think when saying “Step Up Reach Out (SURO)?” First of all, it is a...

Read More >

Believing in ourselves

By: Gustavo Francisco Pérez Blanco

June 11th, 2018

Leadership

The whole room is in silence; it has been raining for half an hour, but raindrops start falling harder...

Read More >

Making the Most of Interrail

By: Frankly Team

August 1st, 2017

Travel

You’ve got three months to kill, and a plane ticket to Europe in your hand...

Read More >

The Time of Your Life Studying Abroad

By: Frankly Team

August 1st, 2017

Abroad

Studying abroad is one of the most exciting adventures of a young person's life...

Read More >

Hemophilia Situations Around the World – Experiences in Tanzania

By: William McKeown

July 18th, 2017

Budapest

My name is William McKeown. I am a 24-year-old doctor from Northern Ireland ...

Read More >

WFH 2016: My Experience

By: Tobias Becker

August 30th, 2016

SURO

Throughout the last years, I’ve been strengthening my efforts to do my part towards a better future ...

Read More >

“Speaking at the 2016 WFH Congress”

By: Run Chanthearithy

August 15th, 2016

SURO

Hello! My name is Run Chanthearithy, a 2015 SURO graduate, and I am from Cambodia ...

Read More >

Every Generation Should be Impatient

By: Frankly Team + Brian O’Mahony

August 9th, 2016

Impatient

Today we will conclude our Interview Series about Dr. Brian O’Mahony, the Chief Executive of the...

Read More >

Sports and I

By: Frankly Team

July 18th, 2016

Sports

I was 16 years old, and I had known the bitterest moments that a person with hemophilia may experienc ...

Read More >

WFH Symposium Spotlight

By: Frankly Team

July 1st, 2016

Leadership

The WFH World Congress 2016 in Orlando includes a highlight...

Read More >

Advocacy is in my DNA

By: Frankly Team + Brian O’Mahony

June 13th, 2016

Advocacy

Join us through a series of articles about an interview we conducted with Dr. Brian O’Mahony...

Read More >

An Experience Like Not so Many on Life

By: Frankly Team

June 13th, 2016

SURO

I began to dream of being a leader in the hemophilia community, so I gave it a try by applying...

Read More >

Advocacy: The Way to Impact and Create Change

By: Frankly Team + Brian O’Mahony

June 9th, 2016

Leadership

Welcome back to this journey of a hemophilia advocate...

Read More >

SURO Project

By: Frankly Team

April 6th, 2016

SURO

For me, the Step Up Reach Out (SURO) program was a huge and diverse experience...

Read More >

Career Decisions and Looking for a Job

By: Frankly Team

March 30th, 2016

Career

Looking for a job is not an easy task. There are millions of people like you preparing to find a job. Although you have the option to start your own career as an entrepreneur...

Read More >

How to Become a Leader in the Bleeding Disorder Community

By: Frankly Team

March 29th, 2016

Leadership

It is possible that during your experience as a member of the bleeding disorder community ...

Read More >

Haemophilia in Motion

By: Frankly Team

March 27th, 2016

Activity

Haemophilia in Motion is a role model Sports Project specifically designed for patients with bleeding disorders ...

Read More >

Social Media: Friend or Foe?

By: Frankly Team

March 24th, 2016

SURO

Social networks such as Facebook, Google+, Instagram and Twitter changed the world of ...

Read More >

The Importance of Sport for Hemophilia Patients

By: Frankly Team

March 23rd, 2016

Sports

Many hemophilia patients are still afraid of participating in sports and living active lives ...

Read More >

The Suro Experience

By: Frankly Team

March 18th, 2016

SURO

After participating in the Step Up Reach Out (SURO) program and attending meetings in San Francisco and Panama City...

Read More >

Making an Impact after Step Up Reach Out 2014/2015

By: Frankly Team

March 15th, 2016

SURO

Step Up Reach Out is an international youth leadership program for young adults in the bleeding disorders community ...

Read More >

Step Up Reach Out SURO - An International Leadership Program

By: Frankly Team

March 12th, 2016

SURO

SURO is an international youth leadership program designed to develop and train young adults ...

Read More >

The Amazing World of Hemophilia

By: Frankly Team

March 8th, 2016

Leadership

Understanding that there are infinite ways to live and experience hemophilia...

Read More >

Mentoring with Hemophilia

By: Frankly Team

March 7th, 2016

Leadership

In October 2015 I was honored with an invitation ...

Read More >

Making a Career Decision with Hemophilia

By: Frankly Team

August 14th, 2015

Career

If it’s time to make decisions about what you’re going to do with the rest of your life, don’t worry ...

Read More >

Common Hemophilia Myths Debunked

By: Frankly Team

December 6th, 2013

Education

Some believe you can overcome the limitations of hemophilia if you participate in more physically demanding sports ...

Read More >

Hemophilia and Sexual Diversity? “Straight Talk” for the Gay Hemophiliac

By: Frankly Team + Ed Keubler

December 4th, 2013

Sexual Diversity

Whether you're gay or straight, if you have hemophilia you're a part of our community...

Read More >

Hemophilia and Sex

By: Carol Sorgen + Ed Kuebler

August 1st, 2013

Sex

If and when you choose to have sex is a decision you and your partner should make...

Read More >

Hemophilia Myths

By: Frankly Team + Jim Fahner, M.D.

July 10th, 2013

Myths

Until a person with hemophilia bleeds to death from a scratch, he can claim royal heritage...

Read More >

Pain Management in Hemophilia

By: Frankly Team

July 10th, 2013

Pain

Many medical professionals consider pain an important vital sign that is difficult ...

Read More >

Protect Your Joints

By: Frankly Team

July 10th, 2013

Healthcare

Admit it, who doesn’t like a scary skeleton? From Halloween costumes to that almost ...

Read More >

Are you Madly in Love?

By: Frankly Team

July 9th, 2013

In Love

Love, it seems, is a universally popular but eternally mysterious pursuit, especially for newbies...

Read More >

Bollywood

By: Frankly Team

July 9th, 2013

Bollywood

Did you know that Bollywood star Abhijeet Bhattacharya recently donated 50,000 Rupees ...

Read More >

Celebrating the Chinese New Year

By: Roscoe Mathieu

July 9th, 2013

China

Of all the holidays we celebrate in this world, the Chinese New Year...

Read More >

Help Wanted: Hemophilia in Africa

By: Mario Ngobeni

July 9th, 2013

Africa

I am hemophilia A patient. My three uncles died from hemophilia, two of them bled to death...

Read More >

Hemophilia and Dating

By: Frankly Team

July 9th, 2013

Dating

Dating is a normal part of growing up and having hemophilia shouldn't keep you...

Read More >

Budapest Travelogue

By: Frankly Team

July 7th, 2013

Budapest

Now that Budapest is no longer under Communist rule, this beautiful, historic city...

Read More >

Munich: Where Metropolis Meets Tradition

By: Frankly Team

April 28th, 2013

Travel

If you should ever travel to Germany, you must visit Munich ...

Read More >

Finding a Mentor and Being a Mentor

By: Frankly Team

April 24th, 2013

Mentoring

There are a number of reasons why you may find yourself looking for a mentor—someone to help guide you in your chosen career...

Read More >

History of Hemophilia

By: Frankly Team

April 23rd, 2013

Hemophilia

Although hemophilia has existed since ancient times, the majority of the advances in ...

Read More >

Healthcare Models Around the World

By: Frankly Team

April 22nd, 2013

Healthcare

SURO is an international youth leadership program designed to develop and train young adults...

Read More >

Maintaining a Healthy Sibling Rivalry

By: Frankly Team

April 18th, 2013

Family

If you grew up with a brother or sister, chances are you have experienced sibling rivalry at some point or another ...

Read More >

Swimming: The Refreshing Way to Stay in Shape

By: Frankly Team

April 17th, 2013

Sports

Many people have childhood memories of splashing in neighborhood pools or jumping in the ocean at a beach resort ...

Read More >

Munich’s Oktoberfest: Bavarian Tradition and International Atmosphere

By: Frankly Team

April 6th, 2013

Travel

When you think of Germany, what comes to mind? High-performance cars, engineering, mountain vistas, and, of course, Oktoberfest! ...

Read More >

What to Consider When Looking at Universities

By: Frankly Team

April 2nd, 2013

Education

If you are at the stage in life where people are asking you, “What are your plans after high school? ...

Read More >

Why it Feels Good to be a Football Fan

By: Frankly Team

April 2nd, 2013

Sports

Football, or “soccer” if you’re in the U.S., is far and away the most popular sport in the world today with well over half-a-billion fans across the globe ...

Read More >

There are no results found, please refine your filters and try again.

GET INVOLVED!

Our mission is to serve as a candid, trusted resource on real issues of concern to teenagers and young adults with hemophilia worldwide. Follow the link below to share desired topics and stories.

Get involved icon
Please enter your first name Please enter your last name Please enter your email address Please enter a valid email address

Hemophilia Worldwide - You are NOT Alone!

Hemo Map

Contact the Editorial Board

Tobias Becker Tobias Becker
Santiago Yepes Santiago Yepes
CONTACT US