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Hemophilia Topics

Hemophilia Topics

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The importance of the youth to the Hemophilia community

By: Amit Sain

September 18th, 2018

Advocacy and Leadership

Amit Sain, a SURO graduate from 2018 used the opportunity of SURO to...

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Former SURO Participant Discusses the 2018 WFH World Congress

By: Tobias Becker

August 28th, 2018

Advocacy and Leadership

Frankly.net editorial board member Tobias Becker sat down with a former SURO...

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Untold Stories – Documentaries about Lives with Hemophilia: A Story from the Creator

By: Amit Sain

July 23rd, 2018

Advocacy and Leadership

My name is Yogesh Sain. I am 26-year-old and living with severe hemophilia...

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A quick guide to studying abroad with hemophilia

By: Tim Reinelt

July 9th, 2018

Travel

The best decision I made for this year was the decision to do a semester...

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An Alumni remembers how SURO shaped him

By: Stefan Tasic

June 18th, 2018

Leadership

What do I think when saying “Step Up Reach Out (SURO)?” First of all, it is a...

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Believing in ourselves

By: Gustavo Francisco Pérez Blanco

June 11th, 2018

Leadership

The whole room is in silence; it has been raining for half an hour, but raindrops start falling harder...

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Hemophilia Situations Around the World – Experiences in Tanzania

By: William McKeown

July 18th, 2017

Budapest

My name is William McKeown. I am a 24-year-old doctor from Northern Ireland ...

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WFH 2016: My Experience

By: Tobias Becker

August 30th, 2016

SURO

Throughout the last years, I’ve been strengthening my efforts to do my part towards a better future ...

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“Speaking at the 2016 WFH Congress”

By: Run Chanthearithy

August 15th, 2016

SURO

Hello! My name is Run Chanthearithy, a 2015 SURO graduate, and I am from Cambodia ...

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Every Generation Should be Impatient

By: Frankly Team + Brian O’Mahony

August 9th, 2016

Impatient

Today we will conclude our Interview Series about Dr. Brian O’Mahony, the Chief Executive of the...

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An Experience Like Not so Many on Life

By: Frankly Team

June 13th, 2016

SURO

I began to dream of being a leader in the hemophilia community, so I gave it a try by applying...

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SURO Project

By: Frankly Team

April 6th, 2016

SURO

For me, the Step Up Reach Out (SURO) program was a huge and diverse experience...

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How to Become a Leader in the Bleeding Disorder Community

By: Frankly Team

March 29th, 2016

Leadership

It is possible that during your experience as a member of the bleeding disorder community ...

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Step Up Reach Out SURO - An International Leadership Program

By: Frankly Team

March 12th, 2016

SURO

SURO is an international youth leadership program designed to develop and train young adults ...

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Hemophilia and Sexual Diversity? “Straight Talk” for the Gay Hemophiliac

By: Frankly Team + Ed Keubler

December 4th, 2013

Sexual Diversity

Whether you're gay or straight, if you have hemophilia you're a part of our community...

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Swimming: The Refreshing Way to Stay in Shape

By: Frankly Team

April 17th, 2013

Sports

Many people have childhood memories of splashing in neighborhood pools or jumping in the ocean at a beach resort ...

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