This website is intended to provide information to an international audience outside the UK.
Young man with hemophilia, sitting on desk, working on a tablet

ADVOCACY AND LEADERSHIP

Advocacy and Leadership

An Experience Like Not so Many on Life

By: Frankly Team

June 13th, 2016

SURO

I began to dream of being a leader in the hemophilia community, so I gave it a try by applying...

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Advocacy: The Way to Impact and Create Change

By: Frankly Team + Brian O’Mahony

June 9th, 2016

Leadership

Welcome back to this journey of a hemophilia advocate...

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Mentoring with Hemophilia

By: Frankly Team

March 7th, 2016

Leadership

In October 2015 I was honored with an invitation ...

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Advocacy is in my DNA

By: Frankly Team + Brian O’Mahony

June 13th, 2016

Advocacy

Join us through a series of articles about an interview we conducted with Dr. Brian O’Mahony...

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Making an Impact after Step Up Reach Out 2014/2015

By: Frankly Team

March 15th, 2016

SURO

Step Up Reach Out is an international youth leadership program for young adults in the bleeding disorders community ...

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The Suro Experience

By: Frankly Team

March 18th, 2016

SURO

After participating in the Step Up Reach Out (SURO) program and attending meetings in San Francisco and Panama City...

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Finding a Mentor and Being a Mentor

By: Frankly Team

April 24th, 2013

Mentoring

There are a number of reasons why you may find yourself looking for a mentor—someone to help guide you in your chosen career...

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Believing in ourselves

By: Gustavo Francisco Pérez Blanco

June 11th, 2018

Leadership

The whole room is in silence; it has been raining for half an hour, but raindrops start falling harder...

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WFH Symposium Spotlight

By: Frankly Team

July 1st, 2016

Leadership

The WFH World Congress 2016 in Orlando includes a highlight...

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SURO Project

By: Frankly Team

April 6th, 2016

SURO

For me, the Step Up Reach Out (SURO) program was a huge and diverse experience...

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The Amazing World of Hemophilia

By: Frankly Team

March 8th, 2016

Leadership

Understanding that there are infinite ways to live and experience hemophilia...

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Every Generation Should be Impatient

By: Frankly Team + Brian O’Mahony

August 9th, 2016

Impatient

Today we will conclude our Interview Series about Dr. Brian O’Mahony, the Chief Executive of the...

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How to Become a Leader in the Bleeding Disorder Community

By: Frankly Team

March 29th, 2016

Leadership

It is possible that during your experience as a member of the bleeding disorder community ...

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Step Up Reach Out SURO - An International Leadership Program

By: Frankly Team

March 12th, 2016

SURO

SURO is an international youth leadership program designed to develop and train young adults ...

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“Speaking at the 2016 WFH Congress”

By: Run Chanthearithy

August 15th, 2016

SURO

Hello! My name is Run Chanthearithy, a 2015 SURO graduate, and I am from Cambodia ...

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WFH 2016: My Experience

By: Tobias Becker

August 30th, 2016

SURO

Throughout the last years, I’ve been strengthening my efforts to do my part towards a better future ...

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Tobias Becker Tobias Becker
Santiago Yepes Santiago Yepes
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