This website is intended to provide information to an international audience outside the UK.


Speaking Frankly is a daring, distinctive website that aspires to serve as a candid, trusted resource on real issues of concern to teenagers and young adults with hemophilia worldwide. The website is led by a team of writers and editors who are members and alumni of the Step Up Reach Out and AFFIRM programs. Step Up Reach Out is a one-year international leadership development program for young men aged 18-25 diagnosed with hemophilia A or B; AFFIRM is a two-year international fellowship program to grow leadership and advocacy skills for men aged 26-38, diagnosed with hemophilia A or B. The site casts light on often taboo subjects such as sexuality, drugs and depression, and offers lively coverage of lifestyle topics including travel, entertainment, health and fitness.

The images used on this site do not necessarily represent actual hemophilia patients.